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Revista de Investigação & Inovação em Saúde
Print version ISSN 2184-1578On-line version ISSN 2184-3791
Abstract
MARQUES, Tiago et al. Needs of Families with a Member with Neuromuscular Pathology: Functional Dimension. RIIS [online]. 2023, vol.6, n.1, pp.99-100. Epub Apr 30, 2023. ISSN 2184-1578. https://doi.org/10.37914/riis.v6i1.216.
Background:
meeting the needs of families with a member who has a Neuromuscular Disorder (ND), enables an improvement in their quality of life, minimizing the possibility of illness and allowing greater family contribution to their functions.
Objectives:
characterize the needs of families with a member who has a ND in the functional dimension.
Methodology:
a quantitative, descriptive, cross-sectional study was carried out with an intentional sample of 30 families. The operative matrix of the Dynamic Model of Family Assessment and Intervention (MDAIF) was used as a data collection instrument. Data processing and analysis were performed by descriptive statistics.
Results:
most members who have a ND are dependent on self-care, clothing, hygiene and using the bathroom; families have saturation of home care role and caregiver role.
Conclusion:
family nurses will be able to help families by creating programs that allow: -the readjustment of family roles where there is saturation; -the possibility of working and supporting caregivers; -specific training regarding the people who have a ND.
Keywords : family health; neuromuscular disorders; nursing; needs.