A criança com Síndrome Nefrótico e com Doença Celíaca: Percepções relativas ao controlo da doença e à forma como lida com ela (*)

 

SALOMÉ VIEIRA SANTOS (**)

ADELINA LOPES DA SILVA (**)

 

 

RESUMO

No âmbito de um estudo mais lato que visa o impacto psicológico do Síndrome Nefrótico e da Doença Celíaca, desenvolveu-se uma entrevista semi-estruturada para crianças. Apresentam-se os resultados decorrentes das respostas a questões específicas que avaliam a percepção da criança no que respeita ao lidar com a doença e ao controlo da mesma. Os participantes (N=81), com idades entre os 6 e os 10 anos, estão distribuídos por três grupos com o mesmo número de indivíduos: G1 - Síndrome Nefrótico, G2 - Doença Celíaca, G3 - Sem Doença Física. Os grupos com doença diferem em alguns comportamentos de coping adoptados para lidar com a doença, sendo também distinta em conteúdos particulares a percepção relativa a aspectos da doença considerados difíceis de suportar; não diferem de forma importante no cumprimento das prescrições médicas, ainda que este pareça mais fácil para o G2.

Palavras-chave: Síndrome Nefrótico, Doença Celíaca, crianças, coping, adesão.

 

 

ABSTRACT

In the context of a larger study directed to the psychological impact of Nephrotic Syndrome and Celiac Disease, a semi-structured interview for children was developed. We present the results related with specific questions which assessed the perception of the child concerning disease control and coping with disease. The participants (N=81), aged between 6 to 10 years old, belong to three groups with the same number of individuals: G1 - Nephrotic Syndrome, G2 - Celiac Disease, G3 - Without Disease. The two disease groups differ in some of the disease related coping behaviors. The two disease groups differ also in specific contents related to aspects of the diseases difficult to manage; they did not differ in an important way in what concerns adherence to medical prescriptions, although this adherence seems more easy to Celiac Disease group.

Key words: Nephrotic Syndrome, Celiac Disease, children, coping, adherence.

 

 

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(*) Parte deste trabalho foi apresentada no I Congresso Hispano-Português de Psicologia: Para uma Perspectiva Integradora, Santiago de Compostela, Setembro de 2000.

(**) Faculdade de Psicologia e de Ciências da Educação da Universidade de Lisboa.