O desempenho dos cuidadores informais na avaliação da qualidade de vida dos doentes oncológicos uma revisão do tema

Alexandra Oliveira^{* 1} & Francisco L. Pimentel²

¹ Serviço de Oncologia Médica do Hospital de São Sebastião, Santa Maria da Feira, Portugal

² Secção Autónoma das Ciências da Saúde, Universidade de Aveiro, Aveiro, Portugal

 

 

Resumo: Um dos maiores objectivos das intervenções com os doentes oncológicos é proporcionar-lhes a melhor Qualidade de Vida (QdV) possível. No entanto, é frequente a dificuldade em determinar a Qualidade de Vida Relacionada com a Saúde (QdVRS) para alguns doentes com cancro, devido a problemas psicológicos, cognitivos e físicos que limitam a sua capacidade em completar questionários. Desta forma, o cuidador surge como um meio natural de medir indirectamente a QdVRS do doente, muito importante para as decisões clínicas. O objectivo deste artigo é proporcionar uma revisão da literatura acerca da viabilidade em usar a informação prestada pelos cuidadores informais acerca da QdV do doente oncológico, contemplando resultados de estudos anteriormente publicados. Espera-se que este artigo possa contribuir e promover, em Portugal uma melhor compreensão e investigação acerca deste tema.

Palavras chave: Cuidador informal, Doente oncológico, Qualidade de vida.

 

The role of the proxys on cancer patients quality of life evaluation a literature review

Abstract: One of the main goals of the interventions with cancer patients is proportionate the best Quality of Life (QoL) to the patient. However, it is often difficult to determine the health related quality of life (HRQoL) of same cancer patients because psychological, cognitive and physical problems limit their ability to complete questionnaires. A proxy, such as family member, may be able to give accurate information about patients HRQoL, information with a great importance for medical decisions. The aim of this article is to proportionate a literature review on the viability in use the proxy derived information on patient QoL, using the results of previous studies. It is hoped that this article may contribute and promote, in Portugal a better understanding and investigation about this issue.

Key words: Cancer patient, Proxy, Quality of life.

 

 

Texto completo disponível apenas em PDF.

Full text only available in PDF format.

 

 

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^* Contactar para E-mail: alexandra.t.oliveira@gmail.com

Recebido em 21 de Abril de 2006 / Aceite em 23 de Setembro de 2006