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Arquivos de Medicina
versión On-line ISSN 2183-2447
Resumen
NOSSA, Paulo y PINA, Maria de Fátima. Access and Use of Data in The Domain of Health Research . Arq Med [online]. 2007, vol.21, n.3-4, pp.103-109. ISSN 2183-2447.
The access to health data involves a set of proceedings related to the privacy and consent of access imposed by the national authorities versus the public interest underlying the research activities. The objective of this paper is to discuss the problems that researchers face to access to health data. The authors defend a clarification of the proceedings and the adoption of "good practices" essential both in the collect and access to data, including the quality of the data which is fundamental to the understanding of health related inequalities.
Palabras clave : data access; good practices; quality in registries; agreement; health research.