Background:

Family caregivers’ information on caring for a child’s gastrostomy at home.

Objective:

To analyze family caregivers’ access to pediatric gastrostomy home care education.

Methodology:

This study used an arts-based creative research method (Dinâmica Corpo-Saber do Método Criativo Sensível) with ten family members of hospitalized infants and preschool-aged children. The study was conducted between June and December 2019 in a public hospital in Rio de Janeiro, Brazil. Lexical analysis was performed using the IRAMUTEQ® software.

Results:

Family caregivers had access to two sources of information to prepare for their children’s hospital discharge. The first was the education received through nurses’ guidance and demonstration of procedures. The second was the caregivers’ observation of health professionals’ care delivery to their children. Some family caregivers received no guidance, showing limitations in discharge preparation.

Conclusion:

Families of children fed via gastrotomy tube must be mobilized to deliver safe care based on nursing knowledge. Nurses must consider family members’ needs regarding the continuity of care at home.

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