Abstract

OLIVEIRA, Carla Roma; MENDES, Álvaro  and  SOUSA, Liliana. Impact of the older family members’ roles in health promotion in families with paramyloidosis. Psicologia [online]. 2021, vol.35, n.2, pp.17-26.  Epub Dec 31, 2021. ISSN 0874-2049.  https://doi.org/10.17575/psicologia.v35i2.1732.

Older family members play a role in health-promotion amongst the younger in hereditary diseases such as paramyloidosis. However, studies that associate these roles with the impact on the younger generations are scarce. The aim of this exploratory qualitative study is to analyze the impact of the roles played by elders in health promotion, in families with history of paramyloidosis. The study adopts the Critical Incidents Technique, applied by semi-structured interviews. The sample comprises 18 participants, who reported 76 incidents. The interviews were recorded, transcribed and analysed thematically. Main results suggest that the impacts on the youngest are: to empower them to cope with the disease (n=41) and to hinder the experience of living with the disease (n=11). The impact of the roles played by the elders in families with paramyloidosis is relevant to health management of the youngest.

Keywords : Familial amyloid polyneuropathy; Hereditary disorders; Risk management; Health promotion; Generation effect.

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