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Psicologia, Saúde & Doenças

versão impressa ISSN 1645-0086

Resumo

LEITE, Ângela; PAUL, Constança  e  SEQUEIROS, Jorge. Psychological well-being in indidivuals requesting pre-symptomatic testing for late-onset neurological diseases and controls. Psic., Saúde & Doenças [online]. 2002, vol.3, n.2, pp.113-118. ISSN 1645-0086.

Psychological issues are important for counselling and intervention in late-onset diseases (Huntington Disease, Machado Joseph Disease and), namely in the process of adjustment to the results of genetic testing. Our aim was to evaluate psychological wellbeing in persons coming for pre-symptomatic testing comparing with normal population. The Psychological General Well Being (PGWB) Schedule was developed for the purpose of providing na index that could be used to measure self-representations of intrapersonal affective or emotional states reflecting a sense of subjective wellbeing or distress. We compared the results between the group of individuals at-risk and the control group: there are significative differences regarding the anxiety and positive wellbeing factors. The group at-risk presents less anxiety and more positive wellbeing. The group at-risk shows higher psychologycal wellbeing indicators than the control group. One may have expected that individuals at-risk who came for pre-symptomatic testing were more concerned about their health and showed more adverse indicators regarding their psychological wellbeing, since they are more aware of the risk of being or not a carrier of one of those diseases. Our results, however, proved to be different: the group at-risk presents less anxiety and more positive wellbeing and shows higher psychologycal wellbeing indicators than the control group. Facing those results we may suggest two possible explanations(a) a defensive and denial attitude from the group of individuals at-risk, and/or that (b) these are psychologically more resilient, what may have motivated adhesion to pre-symptomatic testing, through their own auto-selection.

Palavras-chave : Late-onset Neurological Diseases; Pre-Symptomatic testing; Psychological Well-Being.

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