<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1645-0086</journal-id>
<journal-title><![CDATA[Psicologia, Saúde & Doenças]]></journal-title>
<abbrev-journal-title><![CDATA[Psic., Saúde & Doenças]]></abbrev-journal-title>
<issn>1645-0086</issn>
<publisher>
<publisher-name><![CDATA[Sociedade Portuguesa de Psicologia da Saúde]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1645-00862006000200003</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Aspectos psicossociais e qualidade de vida da degenerescência macular relacionada com a idade]]></article-title>
<article-title xml:lang="en"><![CDATA[Psychosocial impact and quality of life of age-related macular degeneration]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Silva]]></surname>
<given-names><![CDATA[Isabel]]></given-names>
</name>
<xref ref-type="aff" rid="A01"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Pais-Ribeiro]]></surname>
<given-names><![CDATA[José]]></given-names>
</name>
<xref ref-type="aff" rid="A02"/>
</contrib>
</contrib-group>
<aff id="A01">
<institution><![CDATA[,Universidade Fernando Pessoa  ]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
</aff>
<aff id="A02">
<institution><![CDATA[,Universidade do Porto Faculdade de Psicologia e de Ciências da Educação do Porto ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>00</month>
<year>2006</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>00</month>
<year>2006</year>
</pub-date>
<volume>7</volume>
<numero>2</numero>
<fpage>179</fpage>
<lpage>193</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S1645-00862006000200003&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S1645-00862006000200003&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S1645-00862006000200003&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[A degenerescência macular relacionada com a idade é uma patologia que provoca diminuição da acuidade visual e possível perda irreversível da visão, constituindo a principal causa de cegueira nos países ocidentais. Trata-se de uma doença crónica com tendência aumentar e que tem um significativo impacto na vida do doente e da sua família, bem como um impacto colossal em termos económicos para os sistemas de saúde, o que tem contribuído para o interesse crescente pelo desenvolvimento de estudos no domínio das reacções psicológicas ao diagnóstico e gestão da doença, e da qualidade de vida destes doentes. No presente trabalho apresenta-se uma revisão da literatura relativa aos principais aspectos psicossociais, implicações na qualidade de vida, independência e reabilitação destes doentes.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Age-related macular degeneration is a major public health problem, which has significant deleterious consequences, given that it causes decreased visual acuity and loss of central vision. This disease is becoming increasingly common among people over 50 years old. Age-related macular degeneration has serious economic consequences, but it is also associated with a significant psychosocial impact and with an important decrement in quality of life of the patient and his/her family. In the present paper we intend to proceed to a literature review related to psychosocial variables implied in diagnostic and treatment of age-related macular degeneration, patients’ quality of life, independence and rehabilitation.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[Aspectos psicossociais]]></kwd>
<kwd lng="pt"><![CDATA[Degenerescência macular]]></kwd>
<kwd lng="pt"><![CDATA[Qualidade de vida]]></kwd>
<kwd lng="en"><![CDATA[Age-related macular degeneration]]></kwd>
<kwd lng="en"><![CDATA[Psychosocial impact]]></kwd>
<kwd lng="en"><![CDATA[Quality of life]]></kwd>
</kwd-group>
</article-meta>
</front><body><![CDATA[ <p align="center"    ><b>Aspectos psicossociais e qualidade de vida da degeneresc&ecirc;ncia macular    relacionada com a idade</b>      <p align="center" >      <P align="center"    >Isabel Silva<a name="top3"></a><Sup><a href="#3">*</a>1 </Sup>&amp; Jos&eacute;    Pais-Ribeiro<Sup>2 </Sup></P >     <P align="center"    ><Sup>1</Sup> Universidade Fernando Pessoa, Porto </P >     <P align="center"    ><Sup>2</Sup> Faculdade de Psicologia e de Ci&ecirc;ncias da Educa&ccedil;&atilde;o    do Porto </P >     <P align="center"    >&nbsp;</P >     <P align="center"    >&nbsp;</P >     <P    ><B>Resumo: </B>A degeneresc&ecirc;ncia macular relacionada com a idade &eacute;    uma patologia que provoca diminui&ccedil;&atilde;o da acuidade visual e poss&iacute;vel    perda irrevers&iacute;vel da vis&atilde;o, consti</B>tuindo a principal causa    de cegueira nos pa&iacute;ses ocidentais. Trata-se de uma doen&ccedil;a cr&oacute;nica    com tend&ecirc;ncia aumentar e que tem um significativo impacto na vida do doente    e da sua fam&iacute;lia, bem como um impacto colossal em termos econ&oacute;micos    para os sistemas de sa&uacute;de, o que tem contribu&iacute;do para o interesse    crescente pelo desenvolvimento de estudos no dom&iacute;nio das reac&ccedil;&otilde;es    psicol&oacute;gicas ao diagn&oacute;stico e gest&atilde;o da doen&ccedil;a,    e da qualidade de vida destes doentes. No presente trabalho apresenta-se uma    revis&atilde;o da literatura relativa aos principais aspectos psicossociais,    implica&ccedil;&otilde;es na qualidade de vida, independ&ecirc;ncia e reabilita&ccedil;&atilde;o    destes doentes. </P >     <P    ><I>Palavras chave</I>: Aspectos psicossociais, Degeneresc&ecirc;ncia macular,    Qualidade de vida. </P >     <P    >&nbsp;</P >     ]]></body>
<body><![CDATA[<p align="center"    ><b>Psychosocial impact and quality of life of age-related macular degeneration    </b></p >     <P    ><b>Abstract: </B>Age-related macular degeneration is a major public health problem,    which has significant deleterious consequences, given that it causes decreased    visual acuity and loss of central vision. This disease is becoming increasingly    common among people over 50 years old. Age-related macular degeneration has    serious economic consequences, but it is also associated with a significant    psychosocial impact and with an important decrement in quality of life of the    patient and his/her family. In the present paper we intend to proceed to a literature    review related to psychosocial variables implied in diagnostic and treatment    of age-related macular degeneration, patients&rsquo; quality of life, independence    and rehabilitation. </P >          <P    ><I>Key words: </I>Age-related macular degeneration, Psychosocial impact, Quality    of life. </P >     <P    >&nbsp;</P >     <P    >&nbsp;</P >         <P    >Texto completo dispon&iacute;vel apenas em PDF.</P >         <p>Full text only available in PDF format.</p>          <p>&nbsp;</p>     <p>&nbsp;</p>     <P    ><b>Referências</b></P >          ]]></body>
<body><![CDATA[<!-- ref --><P    >Ambrecht, A.M., Aspinall, P.A., &amp; Dhillon, B. (2004). A prospective study of visual function and quality of life following PDT in patients with wet age related macular degeneration. <I>British Journal of Ophthalmology, 88</I>, 1270-1273. </P >     &nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;[&#160;<a href="javascript:void(0);" onclick="javascript: window.open('/scielo.php?script=sci_nlinks&ref=000023&pid=S1645-0086200600020000300001&lng=','','width=640,height=500,resizable=yes,scrollbars=1,menubar=yes,');">Links</a>&#160;]<!-- end-ref --><P    >American Academy of Ophthalmology (2005). <I>Age-related macular degeneration</I>.    Retirado de <U><a href="http://www.aao.org/education/library/ppp/amd_new.cfm" target="_blank">http://www.aao.org/education/library/ppp/amd_new.cfm</a></U>,    em 10 de Maio de 2006. </P >     <P    >Bonastre, J., Pen, C. Le, Anderson, P., Ganz, A., Berto, P., &amp; Berdeaux, G. (2002). The epidemiology, economics and quality of life burden of age-related macular degeneration in France, Germany, Italy and the United Kingdom. European <I>Journal of Health Economics, 3</I>, 94-102. </P >    <P    >Brody, B.L., Roch-Levecq, A.C., Thomas, R.G., Kaplan, R.M., &amp; Brown, S.I. (2005). Self-management of age-related macular degeneration at the 6-month follow-up: A randomized controlled trial. <I>Archives of Ophthalmology, 123</I>(1), 46-53. </P >    <P    >Broman, A.T., Munoz, B., Rodriguez, J., Sanchez, R., Quigley, H.A., Klein, R., Snyder, R., &amp; West, S.K. (2002). The impact of visual impairment and eye disease on vision-related quality of life in a Mexican-American population: Proyecto VER. <I>Investigative Ophthalmology &amp; Visual Science, 43</I>(11), 3393-3398. </P >     <P    >Brown, G.C., Brown, M.M., Sharma, S., Stein, J.D., Roth, Z., Capanella, J., &amp;    Beauchamp, G.R. (2005). The burden of age-related macular degeneration: A value-based    medicine analysis. </DD ><I>Transactions of the American Ophthalmolology Society, 103</I>, 173-186. </P >     <P    >Brown, M.M., Brown, G.C., Stein, J., Roth, Z., Campanella, J., &amp; Beauchamp,    G.R. (2005). Age-related macular degeneration: Economic burden and value-based    medicine analysis. <I>Canadian Journal of Ophthalmology, 40</I>, 277-287. </P >     <P    >Cinoto, R.W., Berezovsky, A., Belfort Jr., R., &amp; Salom&atilde;o, S.R. (2006). Compara&ccedil;&atilde;o entre qualidade de vis&atilde;o auto-relatada e acuidade visual em popula&ccedil;&atilde;o idosa de baixa renda na cidade de S&atilde;o Paulo. <I>Arquivo Brasileiro de Oftalmologia, 69</I>(1), 17-22. </P >    <P    >Colenbrander, A. (2003). Aspects of vision loss &ndash; visual functions and functional vision. <I>Visual Impairment Research, 5</I>(3), 115-136. </P >    <P    >Dahlin-Ivanoff, S., Sonn, U., &amp; Svensson, E. (2001). Development of an ADL instrument targeting elderly persons with age-related macular degeneration. <I>Disability and Rehabilitation, 23</I>(2), 69-79. </P >    ]]></body>
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<body><![CDATA[<P    >Meads, C., &amp; Moore, D. (2006). <I>The clinical effectiveness and cost utility of photodynamic therapy for age-related macular degeneration</I>. Report 24, 2001, West Midlands Health Technology Appraisal Collaboration, Department of Public Health &amp; Epidemiology, University of Birmingham. </P >    <P    >Mitchell, J., &amp; Bradley, C. (2001). Psychometric evaluation of the 12-item Well-Being Questionnaire for use with people with macular disease. <I>Quality of Life Research, 10</I>, 465-473. </P >    <P    >Mitchell, J., &amp; Bradley, C. (2004). Design of an individualised measure of the impact of macular disease on quality of life (the MacDQoL). <I>Quality of Life Research, 13</I>, 1163-1175. </P >    <P    >Mitchell, J., Bradley, P., Anderson, S.J., Ffytche, T., &amp; Bradley, C. (2002). Perceived quality of health care in macular disease: A survey of members of the Macular Disease Society. <I>British Journal of Ophthalmology, 86</I>, 777-781. </P >     <P    >Mitchell, J., Wolffsohn, J.S., Woodcock, A., Anderson, S., McMillan, C.V., Ffytche,    T., Rubinstein, M., Amoaku, W., &amp; Bradley, C. (2005). Psychometric evaluation    of the MacDQoL individualised measure of the impact of macular degeneration    on quality of life. <I>Health and Quality of Life Outcomes, 3</I>(25). Retirado    de <U><a href="http://www.hqol.com/content/3/1/25" target="_blank">www.hqol.com/content/3/1/25</a></U>,    em 7 de Maio de 2006. </P >     <P    >National Society for the Prevention of Blindness (1984). Survey &rsquo;84: Attitudes towards blindness prevention. <I>Sight-Saving, 53</I>, 14-17 </P >    <P    >Percival, J. (2004). Practical solutions to service shortcomings in the care of older people: The case for professional collaboration. <I>British Journal of Ophthalmology, 88</I>, 439-440. </P >    <P    >Ryan, E.B., Anas, A.P., Beamer, M., &amp; Bajorek, S. (2003). Coping with age-related vision loss in everyday reading activities. <I>Educational Gerontology, 29</I>, 37-54. </P >    <P    >Schmier, J.K., Halpern, M.T., &amp; Covert, D. (2006). Validation of the Daily Living Tasks Dependent on Vision (DLTV) Questionnaire in a U.S. population with age-related macular degeneration. <I>Ophthalmic Epidemiology, 13</I>, 137-143. </P >     <P    >Sociedade Portuguesa de Oftalmologia (2006). <I>DMI: Degeneresc&ecirc;ncia macular    relacionada com a idade</I>. Retirado de <U><a href="http://www.dmi.online.pt/" target="_blank">http://www.dmi.online.pt/</a></U>,    em 08 de Maio de 2006. </P >     ]]></body>
<body><![CDATA[<P    >Stein, J.D. (2003). Quality of life with macular degeneration: Perceptions of patients, clinicians, and community members. <I>British Journal of Ophthalmology, 87</I>(1), 8-12. </P >    <P    >Stein, J.D. (2004). Disparities between ophthalmologists and their patients in estimating quality of life. <I>Current Opinion in Ophthalmology, 15</I>(3), 238-243. </P >    <P    >Stein, J.D., Brown, M.M., Brown, G.C., Hollands, H., &amp; Sharma, S. (2003). Quality of life with macular degeneration: Perceptions of patients, clinicians, and community members. <I>British Journal of Ophthalmology, 87</I>(1), 8-12. </P >    <P    >Stelmack, J. (2001). Quality of life of low-vision patients and outcomes of low-vision rehabilitation. <I>Optometry and Vision Science, 78</I>(5), 335-342. </P >    <P    >Sussman-Shalka, C.J., Cimarolli, V.R., &amp; Stuen, C. (2006). The role of organizations in reaching older adults about vision loss. <I>Educational Gerontology, 32</I>, 297-306. </P >    <P    >Tejeria, L., Harper, R.A., Artes, P.H., &amp; Dickinson, C.M. (2002). Face recognition in age related macular degeneration: Perceived disability, measured disability, and performance with a bioptic device. <I>British Journal of Ophthalmology, 86</I>, 1019-1026. </P >          <P    >Williams, R.A., Brody, B.L., Thomas, R.G., Kaplan, R.M., &amp; Brown, S.L. (1998).    The psychosocial impact of macular degeneration. <I>Archives of Ophthalmology,    116</I>, 514-520. </P >     <P    >&nbsp;</P >     <P    >&nbsp;</P >     <P    ><Sup><a name="3"></a><a href="#top3">*</a> </Sup>Contactar para E-mail: <a href="mailto:ilopessilva@hotmail.com">ilopessilva@hotmail.com</a>  </P >     ]]></body>
<body><![CDATA[<P align="right"    ></P >     <P align="right"    >Recebido em 10 de Maio de 2006 / aceite em 2 de Outubro de 2006 </P >        ]]></body><back>
<ref-list>
<ref id="B1">
<nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Ambrecht]]></surname>
<given-names><![CDATA[A.M.]]></given-names>
</name>
<name>
<surname><![CDATA[Aspinall]]></surname>
<given-names><![CDATA[P.A.]]></given-names>
</name>
<name>
<surname><![CDATA[Dhillon]]></surname>
<given-names><![CDATA[B.]]></given-names>
</name>
</person-group>
<article-title xml:lang="en"><![CDATA[A prospective study of visual function and quality of life following PDT in patients with wet age related macular degeneration.]]></article-title>
<source><![CDATA[British Journal of Ophthalmology]]></source>
<year>2004</year>
<volume>88</volume>
<page-range>1270-1273</page-range></nlm-citation>
</ref>
</ref-list>
</back>
</article>
