José L. P. Ribeiro (*)
Rute F. Meneses (*)
Isabel Meneses (**)
Gru.Po- Qvd (***)
RESUMO
O presente trabalho inclui-se num projecto mais vasto do Grupo Português para o estudo da Qualidade de Vida, e visa construir um questionário destinado a crianças até aos 11 anos que sofrem de diabetes tipo 1. Esta é uma doença crónica com características muito específicas, sendo uma delas a precisão da avaliação do estado de glicemia, em tempos certos, e a sua correcção em medidas precisas. Esta rotina, no caso das crianças, é conduzida por quem cuida delas e, obviamente, afecta o estilo de vida e é susceptível de prejudicar gravemente a qualidade de vida da família. A avaliação do impacto do tratamento nessa qualidade de vida torna-se um elemento central nos processos de intervenção actuais. Deste modo, com base na pesquisa bibliográfica, e na informação dada por nove mães cujos filhos, com idades iguais ou inferiores a 11 anos, sofriam de diabetes tipo 1 há mais de um ano, cons-truiu-se um questionário que deverá ser aplicado à população alvo para determinação das suas propriedades psicométricas e clinimétricas.
]]> Palavras-chave: Qualidade de vida, diabetes tipo I, crianças, doenças crónicas.
ABSTRACT
This paper is part of a longer research from the Grupo Português para o Estudo da Qualidade de Vida. The main objective of this paper is to discuss questions about how to built a questionnaire to evaluate Quality of Life in children until 11 years of age having insulino-dependent diabetes. This type of diabetes reach, mainly, young people. We adopt and justify a questionnaire tailored to avaluate mothers´ perception of the Quality of Life of their children having insulinodependent diabetes, but we admit that it is possible to built questionnaires tailored directly to the children´s perception of their own Quality of Life.
Key words: Quality-of-life, insulino-dependent diabetes, children, chronic disease.
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(*) Faculdade de Psicologia e de Ciências da Educação da Universidade do Porto, Hospital Geral de Santo António - Porto.
(**) Chefe de Serviço de Endocrinologia - Hospital Geral de Santo António - Porto.
(***) Grupo Português para o estudo da Qualidade de Vida.
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