SALOMÉ VIEIRA SANTOS (**)

RESUMO

Neste estudo pretende-se avaliar as características do stress parental experimentado por mães de crianças com Síndrome Nefrótico. Para o efeito utiliza-se a versão portuguesa do Parenting Stress Index (PSI) de R. Abidin (1983, 1990). Este instrumento é constituído por várias Subescalas agrupadas em dois Domínios - Criança/Pais - e visa a avaliação da intensidade do stress que ocorre na relação pais-criança. As participantes no estudo estão distribuídas por dois grupos: Grupo 1 (G1) - mães de crianças com Síndrome Nefrótico (n=27); Grupo 2 (G2) - mães de crianças sem doença física (n=27). Os resultados obtidos mostram que as mães do G1 se diferenciam significativamente das mães do G2 no Total de stress, nos dois Domínios (Criança/Pais) e em Subescalas específicas de cada um destes Domínios. Discutem-se os resultados com base nas características da doença e procura-se integrá-los na informação disponível face a outras doenças, obtida através do mesmo instrumento.

Palavras-chave: Stress parental, mães, doença crónica, Síndrome Nefrótico, crianças.

This study analyses the characteristics of parental stress experienced by mothers of children with Nephrotic Syndrome. The Portuguese version of Parenting Stress Index (PSI) from R. Abidin (1983, 1990) is used. The scale is composed by several subscales distributed by two Domains - Child/Parent - and it aims to assess the magnitude of stress in parent-child system. The participants are distributed by two groups: Group 1 (G1) - mothers of children with Nephrotic Syndrome (n=27); Group 2 (G2) - mothers of children without physical disease (n=27). The results show that mothers of G1 significantly differentiate from mothers of G2 in the Total of Stress, in the two Domains (Child/Parent) and in specific subscales. The discussion of the results takes in account not only the disease characteristics but also available information about other diseases obtained with the same instrument.

Key words: Parental stress, mothers, chronic disease, Nephrotic Syndrome, children.

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REFERÊNCIAS BIBLIOGRÁFICAS

Abidin, R. R. (1983). Parenting Stress Index - Manual. Charlotsville, VA: Pediatric Psychology Press.         [ Links ]

Abidin, R. R. (1990). Parenting Stress Index - Manual (3rd ed.). Charlotsville, VA: Pediatric Psychology Press.         [ Links ]

Abidin, R. R. (1995). Parenting Stress Index - Manual (3rd ed.). Odessa: Psychologial Assessment Resources.         [ Links ]

Barakat, L. P., & Linney, J. A. (1992). Children with physical handicaps and their mothers: The interrelation of social support, maternal adjustment, and children adjustment. Journal of Pediatric Psychology, 17, 725-739.         [ Links ]

Bristol, M. M., Gallagher, J. J., & Schopler, E. (1988). Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support. Developmental Psychology, 24, 441-451.         [ Links ]

Carson, D. K., & Schaurer, R. W. (1992). Mothers of children with asthma: Perceptions of parenting stress and mother-child relationship. Psychological Reports, 71, 1139-1148.         [ Links ]

DeMaso, D. R., Campis, L. K., Wypij, D., Bertram, S., Lipshitz, M., & Freed, M. (1991). The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease. Journal of Pediatric Psychology, 16, 137-149.         [ Links ]

Drotar, D. (1992). Integrating theory and practice in psychological intervention with families of children with chronic illness. In T. J. Akamatsu, M. A. Stephens, S. E. Hobfoll, & J. H. Crowther (Eds.), Family health psychology (pp. 175-192). Washington, DC: Hemisphere Publishing Corporation.         [ Links ]

Eiser, C. (1985). The psychology of childhood illness. New York: Springer-Verlag.         [ Links ]

Eiser, C. (1990). Psychological effects of chronic disease. Journal of Child Psychology and Psychiatry, 31, 85-98.         [ Links ]

Goldberg, S., Morris, P., Simmons, R. J., Fowler, R. S., & Levison, H. (1990). Chronic illness in infancy and parenting stress: A comparison on three groups of parents. Journal of Pediatric Psychology, 15, 347-358.         [ Links ]

Hauenstein, E. J., Marvin, R. S., Snyder, A. L., & Clarke, W. L. (1989). Stress in parents of children with insulin-dependent diabetes mellitus. Diabetes Care, 12, 18-23.         [ Links ]

Holmbeck, G. N., Gorey-Ferguson, L., Hudson, T., Seefeldt, T., Shapera, W., Turner, T., & Uhler, J. (1997). Maternal, paternal, and marital functioning in families of preadolescents with spina bifida. Journal of Pediatric Psychology, 22, 167-181.         [ Links ]

Holroyd, J., & Guthrie, D. (1986). Family stress with chronic childhood illness: Cystic fibrosis, neuromuscular disease, and renal disease. Journal of Clinical Psychology, 42, 552-561.         [ Links ]

Johnson, S. B. (1985). The family and the child with chronic illness. In D. C. Turk & R. D. Kerns (Eds.), Health, illness and families. A life-span perspective (pp. 220-254). New York: John Wiley & Sons.         [ Links ]

Kazak, A. E. (1989). Families of chronically ill children: A systems and socio-ecological model of adaptation and challenge. Journal of Consulting and Clinical Psychology, 57, 25-30.         [ Links ]

Kazak, A. E., & Marvin, R. S. (1984). Differences, difficulties, and adaptation: Stress and social networks in families with a handicapped child. Family Relations, 33, 67-77.         [ Links ]

Kazak, A. E., & Nachman, G. S. (1991). Family research on childhood chronic illness: Pediatric oncology as an example. Journal of Family Psychology, 4, 462-483.         [ Links ]

Kazak, A. E., Segal-Andrews, A. M., & Johnson, K. (1995). Pediatric psychology research and practice: A family/systems approach. In M. C. Roberts (Ed.), Handbook of pediatric psychology (2nd ed., pp. 84-104). New York: Guilford Press.         [ Links ]

Korsch, B. M., & Barnett, H. L. (1961). The physician, the family, and the child with nephrosis. The Journal of Pediatrics, 58, 707-715.         [ Links ]

Mehta, M., Bagga, A., Pande, P., Bajaj, G., & Srivastava, R. N. (1995). Behavior problems in nephrotic syndrome. Indian Pediatrics, 32, 1281-1286.         [ Links ]

Nagy, S., & Ungerer, J. A. (1990). The adaptation of mothers and fathers to children with cystic fibrosis: A comparison. CHC, 19, 147-154.         [ Links ]

Naidoo, L. R., Moodley, T. Y., Coovadia, H. M., & Adhikari (1987). Neural deficits, intelligence, maladjustment and family response in children with nephrotic syndrome. SAMJ, 71, 9-10.         [ Links ]

Patterson, J. M., & McCubbin, H. I. (1983). Chronic illness: Family stress and coping. In C. R. Figley, & H. I. McCubbin (Eds.), Stress and the family: Vol 2. Coping with catastrophe (pp. 21-36). New York: Brunner/Mazel.         [ Links ]

Quittner, A. L. (1991). Coping with a hearing-impaired child. A model of adjustment to chronic illness. In J. H. Johnson, & S. B. Johnson (Eds.), Advances in child health psychology (pp. 206-223). Gainesville, FL: J. Hillis Miller Health Science Center and University of Florida Press.         [ Links ]

Quittner, A. L. (1992). Re-examining research on stress and social support: The importance of contextual factors. In A. M. La Greca, L. J. Siegel, J. L. Wallander, & C. E. Walker (Eds.), Stress and coping in child health (pp. 87-115). New York: Guilford Press.         [ Links ]

Quittner, A. L., DiGirolamo, A. M., Michel, M., & Eigen, H. (1992). Parental response to cystic fibrosis: A contextual analysis of the diagnostic phase. Journal of Pediatric Psychology, 17, 683-704.         [ Links ]

Quittner, A. L., Espelage, D. L., Opipari, L. C., Carter, B., Eid, N., & Eigen, H. (1998). Role strain in couples with and without a child with chronic illness: Associations with marital satisfaction, intimacy, and daily mood. Health Psychology, 17, 112-124.         [ Links ]

Quittner, A. L., Glueckauf, R. L., & Jackson, D. N. (1990). Chronic parenting stress: Moderating versus mediating effects of social support. Journal of Personality and Social Psychology, 59, 1266-1278.         [ Links ]

Sabbett, B. F. (1984). Understanding the impact of chronic childhood illness on families. The Pediatric Clinics of North America, 31, 47-57.         [ Links ]

Santos, S. V. (1992). Adaptação portuguesa, para crianças em idade escolar, do Parenting Stress Index (PSI): Resultados preliminares. Revista Portuguesa de Psicologia, 28, 115-132.         [ Links ]

Santos, S. V. ( 1994). Características do stress em pais de crianças com doenças crónicas e em pais de crianças com problemática emocional. Análise Psicológica, 12 (2-3), 301-313.         [ Links ]

Santos, S. V. (1996, Novembro). Parenting Stress Index (PSI): Comparação entre as respostas das amostras normativas americana e portuguesa. Comunicação apresentada no IV Simpósio Nacional de Investigação em Psicologia, Lisboa.         [ Links ]

Santos, S. V. (1997). Versão portuguesa do Parenting Stress Index (PSI): Validação preliminar. In M. Gonçalves, I. Ribeiro, S. Araújo, C. Machado, L. Almeida, & M. Simões (Eds.), Avaliação Psicológica: Formas e Contextos (Vol. 5, pp. 139-149). Braga: Associação dos Psicólogos Portugueses.         [ Links ]

Santos, S. V. (1999). Síndrome Nefrótico e Doença Celíaca na Infância: Estudo Psicológico do seu Impacto nos Pais e na Criança. Dissertação de Doutoramento em Psicologia, Psicologia Clínica. Universidade de Lisboa.         [ Links ]

Santos, S. V., Ataíde, S., & João, P. (1996). Stress parental em pais de crianças com Obesidade e com Doença Renal Crónica. Análise Psicológica, 14 (2/3), 231-243.         [ Links ]

Santos, S. V., & Lara, E. (1996). Stress parental e doença crónica na criança. Psychologica, 15, 147-157.         [ Links ]

Satterwhite, B. B. (1978). Impact of chronic illness on child and family: An overview based on five surveys with implications for management. International Journal Rehab. Research, 1 (1), 7-17.         [ Links ]

Soliday, E., Kool, E., & Lande, M. B. (2000). Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology, 25, 93-103.         [ Links ]

Thompson, R. J. Jr., & Gustafson, K. E. (1996). Adaptation to chronic childhood illness. Washington, DC: American Psychological Association.         [ Links ]

User, I., Sirin, A., Tanman, F., & Emre, S. (1986). The problems imposed on the family by the nephrotic child. The Turkish Journal of Pediatrics, 28, 47-53.         [ Links ]

Vance, J. C., Fazan, L. E., Satterwhite, B., & Pless, I. B. (1980). Effects of nephrotic syndrome on the family: A controlled study. Pediatrics, 65, 948-955.         [ Links ]

(*) Parte deste trabalho foi apresentada no 3º Congresso Europeu de Psicopatologia da Criança e do Adolescente, Lisboa, Maio de 2001.

(**) Faculdade de Psicologia e de Ciências da Educação da Universidade de Lisboa.