<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>0874-0283</journal-id>
<journal-title><![CDATA[Revista de Enfermagem Referência]]></journal-title>
<abbrev-journal-title><![CDATA[Rev. Enf. Ref.]]></abbrev-journal-title>
<issn>0874-0283</issn>
<publisher>
<publisher-name><![CDATA[Escola Superior de Enfermagem de Coimbra - Unidade de Investigação em Ciências da Saúde - Enfermagem]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S0874-02832023000100301</article-id>
<article-id pub-id-type="doi">10.12707/rvi22074</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Processo de cuidados entre cuidador informal e doente com necessidades paliativas no domicílio: Metassíntese]]></article-title>
<article-title xml:lang="en"><![CDATA[The care process between informal caregivers and patients with palliative care needs at home: Meta-synthesis]]></article-title>
<article-title xml:lang="es"><![CDATA[Proceso de atención entre el cuidador informal y el paciente con necesidades paliativas en el domicilio: metasíntesis]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Batista]]></surname>
<given-names><![CDATA[Sandra]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
<xref ref-type="aff" rid="A a"/>
<xref ref-type="aff" rid="A3"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Sapeta]]></surname>
<given-names><![CDATA[Paula]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
<xref ref-type="aff" rid="A a"/>
<xref ref-type="aff" rid="A4"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Instituto Politécnico de Castelo Branco Unidade de Investigação Interdisciplinar Comunidades Envelhecidas Funcionais ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Instituto Politécnico de Castelo Branco Escola Superior de Saúde Dr. Lopes Dias ]]></institution>
<addr-line><![CDATA[Castelo Branco ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Unidade Local de Saúde de Castelo Branco Serviço de Cuidados Intensivos Polivalente ]]></institution>
<addr-line><![CDATA[Castelo Branco ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Universidade de Navarra Instituto Cultura y Sociedade ]]></institution>
<addr-line><![CDATA[Navarra ]]></addr-line>
<country>Spain</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>12</month>
<year>2023</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>12</month>
<year>2023</year>
</pub-date>
<volume>serVI</volume>
<numero>2</numero>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S0874-02832023000100301&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S0874-02832023000100301&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S0874-02832023000100301&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[Resumo  Introdução:  O cuidador informal e o doente com necessidades paliativas são fundamentais no sucesso dos cuidados no domicílio, porém pouco se sabe sobre o cuidado que decorre entre os dois.  Objetivos:  Identificar os fatores que influenciam o cuidado entre o cuidador informal e o doente com necessidades paliativas no domicílio.  Metodologia:  Metassíntese seguindo a metodologia Joanna Briggs Institute. Incluíram-se estudos qualitativos com a perspetiva de cuidadores informais e/ou doentes com necessidades paliativas no domicílio. Pesquisa nas bases MEDLINE, CINHAL, Embase e Scopus (2009-2021).  Resultados:  Incluíram-se 30 estudos com 605 participantes. Surgiram oito temas centrais: fatores facilitadores/ dificultadores dos cuidados informais; estratégias utilizadas; a influência do tempo e da progressão da doença nos cuidados; as motivações para cuidar em casa; as aprendizagens contínuas e as funções do cuidador.  Conclusão:  O cuidado informal é um processo dinâmico onde se interligam fatores facilitadores/dificultadores, estratégias e a progressão da doença. Os resultados permitem compreender a experiência de cuidar e estruturar cuidados centrados na pessoa, flexíveis e adaptados ao contexto.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract  Introduction:  Informal caregivers and patients with palliative care needs are essential for a successful home-based care experience. However, little is known about the care process between informal caregivers and these patients.  Objective:  To identify the factors that influence the care process between informal caregivers and patients with palliative care needs at home.  Methodology:  Meta-synthesis following the Joanna Briggs Institute methodology. We included qualitative studies with informal caregivers and/or patients with palliative care needs at home. We searched MEDLINE, CINHAL, Embase, and Scopus databases (2009-2021).  Results:  Thirty studies were included, with 605 participants. Eight main themes emerged: facilitating factors of informal care; complicating factors of informal care; strategies used; the influence of time in care; the influence of disease progression in care; motivations to provide home-based care; continuous learning; and caregiver&#8217;s roles.  Conclusion:  Informal care is a dynamic process where facilitating/complicating factors, strategies, and disease progression are interconnected. The results contribute to understanding the care process and designing person-centered, flexible, and context-sensitive care plans.]]></p></abstract>
<abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen  Introducción:  El cuidador informal y el paciente con necesidades paliativas son fundamentales para el éxito de los cuidados a domicilio, pero se sabe poco sobre la atención que se presta entre ambos.  Objetivos:  Identificar los factores que influyen en la atención entre el cuidador informal y el paciente con necesidades paliativas en el domicilio.  Metodología:  Metasíntesis siguiendo la metodología Joanna Briggs Institute. Se incluyeron estudios cualitativos con la perspectiva de cuidadores informales y/o pacientes con necesidades paliativas en el domicilio. Búsqueda en las bases MEDLINE, CINHAL, Embase y Scopus (2009-2021).  Resultados:  Se incluyeron 30 estudios con 605 participantes. Surgieron ocho temas centrales: factores que facilitan / dificultan los cuidados informales; estrategias utilizadas; influencia del tiempo y de la progresión de la enfermedad en los cuidados; motivaciones para cuidar en casa; aprendizaje continuo y funciones del cuidador.  Conclusión:  Los cuidados informales son un proceso dinámico en el que se incluyen factores que facilitan / dificultan, estrategias y progresión de la enfermedad. Los resultados permiten comprender la experiencia de cuidar y estructurar unos cuidados centrados en la persona, flexibles y adaptados al contexto.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[cuidados paliativos]]></kwd>
<kwd lng="pt"><![CDATA[doente]]></kwd>
<kwd lng="pt"><![CDATA[cuidadores]]></kwd>
<kwd lng="pt"><![CDATA[domicílio]]></kwd>
<kwd lng="pt"><![CDATA[revisão sistemática]]></kwd>
<kwd lng="en"><![CDATA[palliative care]]></kwd>
<kwd lng="en"><![CDATA[patient]]></kwd>
<kwd lng="en"><![CDATA[caregivers]]></kwd>
<kwd lng="en"><![CDATA[home]]></kwd>
<kwd lng="en"><![CDATA[systematic review]]></kwd>
<kwd lng="es"><![CDATA[cuidados paliativos]]></kwd>
<kwd lng="es"><![CDATA[enfermo]]></kwd>
<kwd lng="es"><![CDATA[cuidadores]]></kwd>
<kwd lng="es"><![CDATA[comunidade]]></kwd>
<kwd lng="es"><![CDATA[revisión sistemática]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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<given-names><![CDATA[V.]]></given-names>
</name>
<name>
<surname><![CDATA[Bei]]></surname>
<given-names><![CDATA[E.]]></given-names>
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<name>
<surname><![CDATA[Seddon]]></surname>
<given-names><![CDATA[D.]]></given-names>
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</person-group>
<article-title xml:lang=""><![CDATA[Why do they care? A qualitative systematic review and meta-synthesis of personal and relational motivations for providing informal care]]></article-title>
<source><![CDATA[Health Psychology Review]]></source>
<year>2022</year>
<page-range>1-33</page-range></nlm-citation>
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</back>
</article>
