<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>0874-2049</journal-id>
<journal-title><![CDATA[Psicologia]]></journal-title>
<abbrev-journal-title><![CDATA[Psicologia]]></abbrev-journal-title>
<issn>0874-2049</issn>
<publisher>
<publisher-name><![CDATA[Associação Portuguesa de Psicologia (APP)Edições Colibri]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S0874-20492021000200045</article-id>
<article-id pub-id-type="doi">10.17575/psicologia.v35i2.1736</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[A experiência psicossocial de cuidadores informais de pessoas com paramiloidose: Um estudo qualitativo]]></article-title>
<article-title xml:lang="en"><![CDATA[The psychosocial experience of informal caregivers of people with paramyloidosis: A qualitative study]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Santos]]></surname>
<given-names><![CDATA[Andreia Valentim]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Pereira]]></surname>
<given-names><![CDATA[José Diogo da Rocha]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
<xref ref-type="aff" rid="A a"/>
<xref ref-type="aff" rid="A4"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Paneque]]></surname>
<given-names><![CDATA[Milena]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
<xref ref-type="aff" rid="A a"/>
<xref ref-type="aff" rid="A4"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Coelho]]></surname>
<given-names><![CDATA[Vânia]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Santa Casa da Misericórdia da Póvoa de Varzim  ]]></institution>
<addr-line><![CDATA[Póvoa de Varzim ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Universidade do Porto i3S - Instituto de Investigação e Inovação em Saúde, IBMC - Instituto de Biologia Molecular e Celular]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Universidade do Porto i3S - Instituto de Investigação e Inovação em Saúde UnIGENe, IBMC - Instituto de Biologia Molecular e Celular]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Universidade do Porto Instituto de Ciências Biomédicas Abel Salazar ]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<pub-date pub-type="pub">
<day>30</day>
<month>12</month>
<year>2021</year>
</pub-date>
<pub-date pub-type="epub">
<day>30</day>
<month>12</month>
<year>2021</year>
</pub-date>
<volume>35</volume>
<numero>2</numero>
<fpage>45</fpage>
<lpage>62</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S0874-20492021000200045&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S0874-20492021000200045&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S0874-20492021000200045&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[Resumo Este estudo teve como objetivo explorar a experiência psicossocial de cuidadores informais de pessoas com paramiloidose. Os participantes foram recrutados através de uma instituição de apoio à paramiloidose, situada numa região endémica no norte de Portugal, onde foram realizadas 22 entrevistas semiestruturadas. Os dados foram analisados com recurso à análise fenomenológica interpretativa. Os resultados indicaram temas e subtemas interrelacionados. Sucintamente, o conhecimento relativo ao ato de cuidar, adquirido através de experiências anteriores, constituiu um aliado na atual prestação de cuidados. Porém, esse ato de cuidar provocou impactos psicossociais que potenciaram a adoção de estratégias de gestão por parte dos cuidadores. Procurando integrar a patologia e respetivos impactos, os cuidadores mencionaram experienciar diferentes fases de um processo de luto. Como resultado do desempenho deste papel, os cuidadores identificaram necessidades que salientam a importância da intervenção com esta população, visando atenuar ou eliminar os impactos psicossociais negativos resultantes do ato de cuidar.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract This study aimed to explore the psychosocial experience of informal paramyloidosis caregivers. Semi-structured interviews were conducted with 22 participants recruited through a paramyloidosis support institution located in an endemic region in northern Portugal. The data were analysed using an interpretative phenomenological analysis. The results indicated themes and sub-themes interrelated with each other. Briefly, the knowledge related to the act of caring, which is acquired through previous experiences, is an ally for the current provision of care. However, the act of caring caused psychosocial impacts that enhanced the adoption of management strategies by the caregivers. Aiming to integrate the disease and its impacts, the caregivers reported experiencing different phases of the grieving process. As a result of the performance of this role, the caregivers identified needs that highlight the importance of intervention with this population, in order to mitigate or eliminate the negative psychosocial impacts resulting from the act of caring.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[Prestação de cuidados]]></kwd>
<kwd lng="pt"><![CDATA[Polineuropatia amiloidótica familiar]]></kwd>
<kwd lng="pt"><![CDATA[Entrevistas]]></kwd>
<kwd lng="pt"><![CDATA[Impacto psicossocial]]></kwd>
<kwd lng="pt"><![CDATA[Necessidades]]></kwd>
<kwd lng="en"><![CDATA[Care provision]]></kwd>
<kwd lng="en"><![CDATA[Familial amyloid polyneuropathy]]></kwd>
<kwd lng="en"><![CDATA[Interviews]]></kwd>
<kwd lng="en"><![CDATA[Psychosocial impact]]></kwd>
<kwd lng="en"><![CDATA[Needs]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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