Questionário de problemas familiares: desenvolvimento da versão portuguesa de um instrumento de avaliação de sobrecarga familiar
Miguel Xavier1,2, Manuel Gonçalves Pereira1, Bernardo Barahona Corrêa2, & José Miguel Caldas de Almeida1,3
1Clínica Universitária de Psiquiatria e Saúde Mental da Faculdade de Ciências Médicasda Universidade Nova de Lisboa – Portugal
2Hospital de S.Francisco Xavier – Portugal
3Coordenador do "Mental Health Program – Division of Health Promotion and Protection"Pan American Health Organization (PAHO), Washington DC – U.S.A.
RESUMO: Com a reformulação dos modelos de prestação de cuidados em psiquiatria e saúde mental, tem-se verificado um aumento do número de doentes com perturbações mentais graves a viver com a família, cujos membros passam a estar assim potencialmente sujeitos a uma sobrecarga psicológica significativa. Dado o papel central dos familiares na prestação de cuidados informais, é de extrema relevância avaliar de forma padronizada as suas dificuldades, nomeadamente quanto à necessidade de intervenções de tipo psicoeducacional. Nos últimos anos têm sido elaborados vários instrumentos especificamente para a avaliação da sobrecarga familiar: neste trabalho, os autores descrevem o desenvolvimento da versão portuguesa do "Family Problem Questionnaire-FPQ". Após tradução e retroversão, foi feita a administração do FPQ a uma amostra de conveniência de 160 familiares de indivíduos com diagnóstico de esquizofrenia: numa análise preliminar, os resultados demonstraram boa aceitação e propriedades psicométricas satisfatórias. Este instrumento parece, pois, conter boas potencialidades de aplicação em actividades de investigação e monitorização de qualidade de cuidados prestados nos serviços de saúde mental, nomeadamente em intervenções psicoeducacionais.
Palavras chave: Avaliação de cuidados em saúde mental, Esquizofrenia, Qualidade de cuidados, Sobrecarga familiar
]]> Family problem questionnaire: development of the portuguese version of a family burden evaluation tool
ABSTRACT: Probably due to the shift from institutional care to community care, the research has shown that informal carers (eg, family members) of patients with severe and long-term mental illness may experience an important psychological and emotional burden. Given that the family members are becoming such valuable resources as carers, it is crucial to assess their difficulties and needs, namely for the proposal of a psycho-educational intervention. In order to achieve this goal, several instrument focused on family burden assessment have been developed in the last years: in this paper, the authors report the development of the portuguese version of the "Family Problem Questionnaire-FPQ". After the back-translation procedures, a sample of 160 informal caregivers of patients with schizophrenia was evaluated using the FPQ: on a preliminar analysis, the results showed good acceptance and satisfactory psychometric properties. Thus, the FPQ seems to be potentially useful in a wide range of research and practical settings, including clinical and quality of care assessments, as well on the monitoring of psychoeducational interventions.
Key words: Family burden, Mental health care evaluation, Quality of care, Schizophrenia
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Dissertação de Doutoramento, apresentada à Universidade Nova de Lisboa. Lisboa: Faculdade de Ciências Médicas.