Marisa Silva1, & José Luís Pais Ribeiro2
1FPCEUP/ Agrupamento vertical da Escola EB 2,3 de Avintes; 2FPCE-Universidade do Porto
RESUMO: Apresentase um estudo de adaptação da Pediatric Oncology Quality of Life Scale, uma escala com 21 itens, distribuídos por três dimensões, que é respondida pelos pais da criança com cancro. Participaram 125 progenitores, divididos por dois grupos: pais de crianças com cancro (N= 65) e pais de crianças sobreviventes ao cancro, que tinham terminado o tratamento há mais de cinco anos (N=60). A média de idade das crianças é de 8 anos para o grupo de doentes e de 12 anos para o grupo de sobreviventes. Adoptámos uma perspectiva conservadora de adaptação da escala, onde tentámos manter a estrutura da versão portuguesa idêntica à da versão original. Ficámos então com uma versão com 21 itens distribuídos por três dimensões. As propriedades métricas são satisfatórias, a análise factorial exploratória que seguiu os passos da versão original em Inglês mostra que alguns dos itens carregam outros factores. Genericamente pode-se dizer que a escala tem propriedades satisfatórias, que é adequada para avaliar a qualidade de vida de crianças com cancro, mas que necessita de continuar a ser investigada
Palavraschave: Qualidade de vida, Crianças, Sobrevivente cancro.
Paediatric oncology quality of life scale – POQOLS: adaptation of a questionnaire to the portuguese population
ABSTRACT: This study describes the development of the Pediatric Oncology Quality of Life Scale (POQOLS), a 21 item scale, a parent report measure for assessing the quality of life (QOL) of children with cancer. Participants are 125 children with cancer, 65 survivors cancer free for more than five years (mean age 12 years) and 60 with cancer (mean age 8 years), and their parents. The questionnaire includes three dimensions, physical function and role restriction, emotional distress, and reaction to current medical treatment, with a score for each dimension more a total score. We look for a conservative solution and maintain the original dimensional solution. Results show adequate internal consistency reliabilities of the total scale and the three factors were appropriate. We can say that the Portuguese version is an appropriate instrument to assess the QoL of children with cancer and that measures the same constructs in the same way that the original version
]]> Key words: Quality of life, Children, Cancer disease.
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REFERÊNCIAS
ACS (2008). Glossary American Cancer Society. Retirado em 30/05/2008. in http://www.cancer.org/docroot/ETO/content/ETO_1_7X_Glossary_of_Terms_Relating_To_Chemotherapy.asp
Cantrell, M. (2007). Healthrelated quality of life in childhood cancer: State of Science. Oncology, 34 (1), 103-111. [ Links ]
Chang, P. & Yeh, C. (2005). Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. PsychoOncology, 14, 125-134.
Christie, M., French, D., Weatherstone, L., West, A., and Applied Psychology Research Group. (1991). The patients’ perception of chronic disease and its management: Psychosomatics, holism and quality of life in contemporary management of childhood asthma. Psychotherapy and Psychosomatics, 56, 197-203
Cleary, P., Morrissey, G., Yver, A., & Oster, G. (1994). The effects of rG-CSF on healthrelated quality of life in children with congenital agranulocytosis. Quality of Life Research, 3, 307-315.
Costa, M. (1996). Registo oncológico pediátrico (019 anos). Hospital de S. João (19781994). Estudo descritivo e análise de sobrevida. (Tese de Mestrado). Faculdade de Medicina da Universidade do Porto.
De Vijver, F., & Hambleton, R. (1996). Translating testes: some pratical guidelines. European Psychologist,1(2), 89-99
Fabes, R. (1987). Contextual judjements of quality of life and adolescent cognitive development. Adolescence, 22 (88), 841-848
Foucher, E.,Stiller, C., Kaatsch, P., Berrino, F., Coebergh, J., Lacour, B. & Parkin, M. (2004). Geographical patterns and time trends of cancer incidence and survival among children and adolescents in Europe since the 1970s (the ACCIS Project): an epidemiological study. The Lancet, 364, 2097-2105.
French, D., Christie, M., & Sowden, A. (1994). The reproducibility of the Childhood Asthma Questionnaires: Measures of quality of life for children with asthma aged 416 years. Quality of Life Research 3, 215-224.
Goodwin, D., Boggs, S. & Pole, J. (1994). Development and validation of the Pediatric Oncology Quality of Life Scale. Psychological Assessment, 6 (4), 321-328.
Hinds, P., Burghen, E., Haase, J. & Philips, C. (2006). Advances in defining, conceptualizing and measuring quality of life in pediatric patients with cancer. Oncology Nursing Fórum, 33 (1), 23-29.
]]> Hörnquist, J., Wikby, A., Hansson, B., & Anderson, P.O. (1993). Quality of life: Status and change (QLsc) reliability, validity and sensivity of a generic assessment approach tailored for diabetes. Quality of Life Research,2, 263-279.Lewis, C., Pantell, R., & Kieckhefer, G. (1989). Assessment of children’s health status: Field test of new approaches. Medical Care, 27 (3 supplement), S54-S65.
Mulhern, R., Ochs, J., Armstrong, F., Horowitz, M., Friedman, A. & Copeland, D.(1989). Assessment of quality of life among pediatric patients with cancer. Psychological Assessment, 1 (2), 130-138.
Nespoli, L., Verri, A., Locatelli, F., Bertuggia, L., Talbi, R., & Burgio, G. (1995). The impact of paediatric bone marrow transplantation on quality of life. Quality of Life Research, 3, 233-240.
Pais-Ribeiro, J. (1995). Questões acerca da avaliação da qualidade de vida em crianças. In: L. Almeida, M. Araújo, M. VilaChã e M. Oliveira (Edts.) Áreas de intervenção e compromissos sociais do psicólogo. (pp. 4553). Actas da Convenção Anual da APPORT: Lisboa: APPORT.
Pais-Ribeiro, J., Meneses, R., & Meneses, I. (1998). Avaliação da qualidade de vida em crianças com diabetes tipo I. Análise Psicológica, XVI (1), 91-100
Rapley, M. (2003). Quality of life research: A critical introducion. Great Britain: SAGE Publications.
Ribeiro, J. (2004). Quality of life is a primary endpoint in clinical settings. Clinical nutrition, 23 (1), 121-130.
Sheppard, L., Eiser, C., & Kingston, J. (2005). Mothers’ perceptions of children’s quality of life following early diagnosis and treatment for retinoblastoma (RB). Child: Care, Health and Development, 31(2), 137-142.
Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38, 1161-1173.
]]> Taylor, S., & Aspinwall, L. (1990). Psychosocial aspects of chronic illness. In: P. Costa, e G.VandenBos (Edts.) Psychological aspects of serious illness: Chronic conditions, fatal diseases, and clinical care. (pp.3-60). Washington: APA.The WHOQOL Group. (1998). The world health organization quality of life assessment (WHOQOL): development and general psychometric properties. Social Science & Medicine, 46(12), 1569-1585.
Recebido em 12 de Dezembro de 2007 / aceite em 20 de Maio de 2008
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