<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1646-107X</journal-id>
<journal-title><![CDATA[Motricidade]]></journal-title>
<abbrev-journal-title><![CDATA[Motri.]]></abbrev-journal-title>
<issn>1646-107X</issn>
<publisher>
<publisher-name><![CDATA[Edições Desafio Singular]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1646-107X2024000100029</article-id>
<article-id pub-id-type="doi">10.6063/motricidade.33968</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Ser cuidador informal em cuidados paliativos]]></article-title>
<article-title xml:lang="en"><![CDATA[Being an informal caregiver in palliative care]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Duarte]]></surname>
<given-names><![CDATA[Maria da Graça]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Alves]]></surname>
<given-names><![CDATA[Telma]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Ribeirinho]]></surname>
<given-names><![CDATA[Carla]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Alves]]></surname>
<given-names><![CDATA[Sónia]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Unidade Local de Saúde Tâmega e Sousa Centro Saúde Amarante ]]></institution>
<addr-line><![CDATA[Amarante ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Câmara Municipal de Sintra  ]]></institution>
<addr-line><![CDATA[Sintra ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Universidade de Lisboa Instituto Superior de Ciências Sociais e Políticas ]]></institution>
<addr-line><![CDATA[Lisboa ]]></addr-line>
<country>Portugal</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>03</month>
<year>2024</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>03</month>
<year>2024</year>
</pub-date>
<volume>20</volume>
<numero>1</numero>
<fpage>29</fpage>
<lpage>35</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S1646-107X2024000100029&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S1646-107X2024000100029&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S1646-107X2024000100029&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[RESUMO Este estudo teve como objetivo compreender as perceções (dificuldades, necessidades, repercussões positivas e negativas, estratégias utilizadas e momentos significativos) de quem é cuidador informal de pessoas em cuidados paliativos e em fim de vida. Foi aplicado um inquérito por questionário online, tendo sido obtidas 70 respostas. Os dados recolhidos foram alvo de tratamento quantitativo e qualitativo, e os resultados revelam que a maioria dos inquiridos são portugueses, do sexo feminino, com idade média igual ou superior a 54 anos, elevadas habilitações literárias, tendo-se tornado cuidadores face a doença grave ou dependência de um familiar. Os resultados demonstraram que cuidar tem condições comuns, mas revelam que é um processo único, influenciado por múltiplas variáveis, entre as quais o suporte percebido. Tratando-se de cuidados em final de vida, representam uma maior sobrecarga sobre os cuidadores, embora cuidar seja um processo dinâmico, no qual interagem fatores facilitadores, protetores e outros dificultadores, estratégias adaptativas, dependendo dos recursos individuais, quer da pessoa cuidada, quer do cuidador, bem como de outros determinantes em saúde e suporte social, assim como o sentido de propósito, abnegação e utilidade experienciada pelo cuidador.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[ABSTRACT This study aimed to understand the perceptions (difficulties, needs, positive and negative repercussions, strategies used and significant moments) of informal caregivers of people undergoing palliative and end-of-life care. An online questionnaire survey was administered, obtaining 70 responses. The data collected were subject to quantitative and qualitative analysis. Data revealed that the majority of respondents are Portuguese, female, with an average age equal to or greater than 54 years, with high education and educational qualifications, having become caregivers in the face of a family member's severe illness or dependence. The results show that caring has common conditions but reveals a unique process influenced by multiple variables, including perceived support. In the case of end-of-life care, they represent a greater burden on caregivers, although care is a dynamic process in which facilitating, protective and other hindering factors interact, adaptive strategies, depending on individual resources, whether of the person being cared for, or of the caregiver, as well as other determinants of health and social support, as well as the sense of purpose, selflessness and usefulness experienced by the caregiver.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[cuidados paliativos]]></kwd>
<kwd lng="pt"><![CDATA[cuidar]]></kwd>
<kwd lng="pt"><![CDATA[cuidadores informais]]></kwd>
<kwd lng="en"><![CDATA[palliative care]]></kwd>
<kwd lng="en"><![CDATA[to care]]></kwd>
<kwd lng="en"><![CDATA[informal caregivers]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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