<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>2182-5173</journal-id>
<journal-title><![CDATA[Revista Portuguesa de Medicina Geral e Familiar]]></journal-title>
<abbrev-journal-title><![CDATA[Rev Port Med Geral Fam]]></abbrev-journal-title>
<issn>2182-5173</issn>
<publisher>
<publisher-name><![CDATA[Associação Portuguesa de Medicina Geral e Familiar]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S2182-51732021000600516</article-id>
<article-id pub-id-type="doi">10.32385/rpmgf.v37i6.12868</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Perder um filho em idade pediátrica: estudo qualitativo do apoio ao luto parental]]></article-title>
<article-title xml:lang="en"><![CDATA[To lose a child of pediatric age: a qualitative study of parental bereavement support]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Costa]]></surname>
<given-names><![CDATA[Ana Rita]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Almeida]]></surname>
<given-names><![CDATA[Filipe]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Universidade do Porto Faculdade de Medicina ]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Centro Hospitalar Universitário de São João Diretor do Serviço de Humanização ]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<pub-date pub-type="pub">
<day>30</day>
<month>12</month>
<year>2021</year>
</pub-date>
<pub-date pub-type="epub">
<day>30</day>
<month>12</month>
<year>2021</year>
</pub-date>
<volume>37</volume>
<numero>6</numero>
<fpage>516</fpage>
<lpage>533</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S2182-51732021000600516&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S2182-51732021000600516&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S2182-51732021000600516&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[Resumo  Objetivos: A perda de um filho em idade pediátrica é uma das vivências mais dolorosas que o ser humano pode enfrentar, sendo que o luto parental é um processo intenso e dinâmico que urge acompanhar e apoiar. Assim, pretende-se identificar necessidades a suprir no apoio prestado pelos profissionais de saúde e pela entidade Centro Hospitalar Universitário de São João (CHUSJ) a pais que vivenciaram a morte de um filho em idade pediátrica por doença oncológica e delinear recomendações para a melhoria desse apoio.  Métodos:  Estudo qualitativo baseado em entrevistas semiestruturadas a pais que perderam um filho em idade pediátrica por doença oncológica, acompanhados no Serviço de Oncologia Pediátrica (SOP) do CHUSJ. Após transcrição das entrevistas procedeu-se à análise qualitativa dos dados com recurso ao software ATLAS.ti.  Resultados:  Os dados colhidos confirmam o impacto que a doença oncológica e a perda de um filho têm na vida de um pai a nível pessoal, familiar, social e profissional. Identificaram-se pontos fortes nos apoios prestados a nível emocional, instrumental e informacional, principalmente ao longo do período de doença e fim de vida (luto antecipatório). Os principais aspetos a melhorar pela entidade hospitalar e pela equipa de profissionais de saúde relacionam-se com a comunicação de más notícias, articulação com outras unidades de saúde (e.g., cuidados de saúde primários) ou de ação social e prestação de apoio psicológico. Destaca-se a necessidade de reforçar o apoio ao luto após a morte do filho.  Conclusão: À semelhança do realizado em vários países, é pertinente investir nos cuidados paliativos pediátricos e na estruturação de programas formais de apoio ao luto parental. Neste sentido, considera-se importante estudar mais aprofundadamente esta realidade a nível nacional, para melhor definir os pontos a reforçar no apoio prestado a quem perde um filho.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract  Aims: The loss of a child of pediatric age is one of the most painful experiences the human being can endure and parental bereavement is an intense and dynamic process that needs monitoring and support. Thus, we aim to identify the needs to be met in the support provided by health professionals and the Centro Hospitalar Universitário de São João (CHUSJ) to parents that experienced the loss of a child of pediatric age due to an oncologic disease and outline recommendations to improve that support.  Methods:  Qualitative study based on semi-structured interviews with parents who lost a child of pediatric age due to an oncologic disease, followed at the Pediatric Oncology Service (SOP) of CHUSJ. After transcription of the interviews, the data were analyzed qualitatively using the software ATLAS.ti.  Results:  Collected data confirm the recognized impact that an oncologic disease and the loss of a child has on a parent&#8217;s personal, family, social and professional life. Strengths were identified in the support provided at an emotional, instrumental, and informational level, especially throughout the period of illness and at the end of life (anticipatory grief). The main aspects to be improved by the team of health professionals and the hospital relate to the communication of bad news, articulation with other health units (e.g., primary health care) or social services, and the provision of psychological support. The need to reinforce bereavement support after the child&#8217;s death stands out.  Conclusion:  As is done in several countries, it is pertinent to invest in pediatric palliative care and in the structuration of formal parental bereavement support programs. That being said, we consider it important to study this reality more deeply at a national level in order to better establish the points to be reinforced in the support provided to those who lose a child.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[Oncologia pediátrica]]></kwd>
<kwd lng="pt"><![CDATA[Luto]]></kwd>
<kwd lng="pt"><![CDATA[Apoio]]></kwd>
<kwd lng="pt"><![CDATA[Parentalidade.]]></kwd>
<kwd lng="en"><![CDATA[Pediatrics]]></kwd>
<kwd lng="en"><![CDATA[Medical oncology]]></kwd>
<kwd lng="en"><![CDATA[Bereavement]]></kwd>
<kwd lng="en"><![CDATA[Social support]]></kwd>
<kwd lng="en"><![CDATA[Parents.]]></kwd>
</kwd-group>
</article-meta>
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