<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>2184-1578</journal-id>
<journal-title><![CDATA[Revista de Investigação & Inovação em Saúde]]></journal-title>
<abbrev-journal-title><![CDATA[RIIS]]></abbrev-journal-title>
<issn>2184-1578</issn>
<publisher>
<publisher-name><![CDATA[Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa, Unidade de Investigação e Desenvolvimento]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S2184-15782023000100099</article-id>
<article-id pub-id-type="doi">10.37914/riis.v6i1.216</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Necessidades das famílias com membro portador de patologia neuromuscular: dimensão funcional]]></article-title>
<article-title xml:lang="en"><![CDATA[Needs of Families with a Member with Neuromuscular Pathology: Functional Dimension]]></article-title>
<article-title xml:lang="es"><![CDATA[Necesidades de las famílias com un membro com patología neuromuscular: Dimensión Funcional]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Marques]]></surname>
<given-names><![CDATA[Tiago]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Moutinho]]></surname>
<given-names><![CDATA[Lídia]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Fernandes]]></surname>
<given-names><![CDATA[Maria]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Guedes]]></surname>
<given-names><![CDATA[Virgínia]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Ferreira]]></surname>
<given-names><![CDATA[Manuela]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Figueiredo]]></surname>
<given-names><![CDATA[Maria Henriqueta]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Marques]]></surname>
<given-names><![CDATA[Anita]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Centro Hospitalar de Vila Nova de Gaia/Espinho  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Escola Superior de Saúde Ribeiro Sanches  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Escola Superior de Enfermagem do Porto  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af5">
<institution><![CDATA[,Escola Superior de Enfermagem do Porto  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af6">
<institution><![CDATA[,ARS NORTE ACES Grande Porto VII USF Nova Salus]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>06</month>
<year>2023</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>06</month>
<year>2023</year>
</pub-date>
<volume>6</volume>
<numero>1</numero>
<fpage>99</fpage>
<lpage>100</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S2184-15782023000100099&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S2184-15782023000100099&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S2184-15782023000100099&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[Resumo  Enquadramento:  dar resposta às necessidades das famílias com membro Portador de Patologia Neuromuscular (PPN), possibilita uma melhoria na qualidade de vida dos mesmos, minimizando a possibilidade de doença e permite maior contribuição familiar nas suas funções.  Objetivos:  este estudo tem como objetivo caracterizar as necessidades das famílias com membro PPN, na sua dimensão funcional.  Metodologia:  foi realizado um estudo quantitativo, descritivo, transversal, com amostra intencional de 30 famílias. Utilizámos um formulário construído com base na matriz operativa do Modelo Dinâmico de Avaliação e Intervenção Familiar (MDAIF) como instrumento de colheita de dados. Tratamento e análise de dados efetuados pela estatística descritiva.  Resultados:  os membros portadores de patologia neuromuscular, na sua maioria são dependentes no autocuidado vestuário, higiene e uso do sanitário; a família apresenta a saturação do papel do cuidado doméstico e a saturação do papel de prestador de cuidados.  Conclusão:  o enfermeiro de família poderá dar resposta às famílias com a criação de programas que permitam: -reajuste dos papeis familiares onde existe saturação; -possibilidade de trabalhar e dar apoio ao prestador de cuidados; -formação específica no que respeita aos cuidados ao membro PPN.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract  Background:  meeting the needs of families with a member who has a Neuromuscular Disorder (ND), enables an improvement in their quality of life, minimizing the possibility of illness and allowing greater family contribution to their functions.  Objectives:  characterize the needs of families with a member who has a ND in the functional dimension.  Methodology:  a quantitative, descriptive, cross-sectional study was carried out with an intentional sample of 30 families. The operative matrix of the Dynamic Model of Family Assessment and Intervention (MDAIF) was used as a data collection instrument. Data processing and analysis were performed by descriptive statistics.  Results:  most members who have a ND are dependent on self-care, clothing, hygiene and using the bathroom; families have saturation of home care role and caregiver role.  Conclusion:  family nurses will be able to help families by creating programs that allow: -the readjustment of family roles where there is saturation; -the possibility of working and supporting caregivers; -specific training regarding the people who have a ND.]]></p></abstract>
<abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen  Marco contextual:  responder a las necesidades de las familias con un miembro con Patología Neuromuscular (PPN), posibilita una mejora en su calidad de vida, minimizando la posibilidad de enfermedad y permitiendo una mayor contribución familiar a sus funciones.  Objetivos:  este estudio tiene como objetivo caracterizar las necesidades de las familias con un miembro con Patología Neuromuscular (PPN), en su dimensión funcional.  Metodología:  se realizó un estudio cuantitativo, descriptivo, transversal, con una muestra intencional de 30 familias. Se utilizó un formulario construido sobre la matriz operativa del Modelo Dinámico de Evaluación e Intervención Familiar (MDAIF) como instrumento de recolección de datos. Procesamiento y análisis de datos realizado por estadística descriptiva.  Resultados:  la mayoría de los afiliados con patología neuromuscular son dependientes del autocuidado, vestimenta, higiene y uso del baño; la familia presenta la saturación del rol de cuidado doméstico y la saturación del rol de cuidador.  Conclusión:  la enfermera de la familia podrá responder a las familias con la creación de programas que permitan: - reajuste de los roles familiares donde hay saturación; -posibilidad de trabajar y apoyar al cuidador; -formación específica respecto al cuidado de la persona con PPN.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[saúde da família]]></kwd>
<kwd lng="pt"><![CDATA[doenças neuromusculares]]></kwd>
<kwd lng="pt"><![CDATA[enfermagem]]></kwd>
<kwd lng="pt"><![CDATA[necessidades]]></kwd>
<kwd lng="en"><![CDATA[family health]]></kwd>
<kwd lng="en"><![CDATA[neuromuscular disorders]]></kwd>
<kwd lng="en"><![CDATA[nursing]]></kwd>
<kwd lng="en"><![CDATA[needs]]></kwd>
<kwd lng="es"><![CDATA[salud de la familia]]></kwd>
<kwd lng="es"><![CDATA[enfermedades neuromusculares]]></kwd>
<kwd lng="es"><![CDATA[enfermería]]></kwd>
<kwd lng="es"><![CDATA[necesidades]]></kwd>
</kwd-group>
</article-meta>
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