<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>2184-1578</journal-id>
<journal-title><![CDATA[Revista de Investigação & Inovação em Saúde]]></journal-title>
<abbrev-journal-title><![CDATA[RIIS]]></abbrev-journal-title>
<issn>2184-1578</issn>
<publisher>
<publisher-name><![CDATA[Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa, Unidade de Investigação e Desenvolvimento]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S2184-15782024000200033</article-id>
<article-id pub-id-type="doi">10.37914/riis.v7i2.382</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Famílias de crianças com condições crónicas: perceção do apoio dado pelos enfermeiros]]></article-title>
<article-title xml:lang="es"><![CDATA[Familias de niños con enfermedades crónicas: percepción del apoyo prestado por los enfermeros]]></article-title>
<article-title xml:lang="en"><![CDATA[Families of children with chronic conditions: perceived support provided by nurses]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Lemos]]></surname>
<given-names><![CDATA[Sara]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Barbieri-Figueiredo]]></surname>
<given-names><![CDATA[Maria]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Andrade]]></surname>
<given-names><![CDATA[Luísa]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Lima]]></surname>
<given-names><![CDATA[Lígia]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,University of Porto Institute of Biomedical Sciences Abel Salazar ]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,University of Huelva  ]]></institution>
<addr-line><![CDATA[Huelva ]]></addr-line>
<country>Spain</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Nursing School of Porto  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Portugal</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Center for Health Technology and Services Research  ]]></institution>
<addr-line><![CDATA[Porto ]]></addr-line>
<country>Portugal</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>07</month>
<year>2024</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>07</month>
<year>2024</year>
</pub-date>
<volume>7</volume>
<numero>2</numero>
<fpage>33</fpage>
<lpage>46</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_arttext&amp;pid=S2184-15782024000200033&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_abstract&amp;pid=S2184-15782024000200033&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.pt/scielo.php?script=sci_pdf&amp;pid=S2184-15782024000200033&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[Resumo  Enquadramento:  cuidar crianças com condições crónicas e suas famílias requer um conhecimento aprofundado das famílias e do seu processo de gestão da doença.  Objetivos:  descrever o perfil sociodemográfico dos pais e clínico das crianças/adolescentes com condição crónica; descrever a perceção dos pais acerca do apoio dado pelos enfermeiros e explorar a associação entre a perceção de apoio e variáveis sociodemográficas.  Metodologia:  estudo descritivo-correlacional, no qual participaram 237 pais que responderam a um questionário online, utilizando a Versão Portuguesa do Iceland-Family Perceived Support Questionnaire e questões sobre a gestão da doença e a perceção dos pais sobre a sua saúde e a dos seus filhos.  Resultados:  a maioria dos respondentes eram mães de adolescentes, com doenças crónicas físicas e perturbações do comportamento, que reportaram uma perceção do apoio dado pelos enfermeiros acima do ponto médio da escala, maior ao nível do domínio cognitivo. Foi encontrada uma associação entre a perceção de apoio dado pelos enfermeiros e o grau de escolaridade dos pais, a idade dos pais, a idade das crianças e a autoperceção da saúde do pai/mãe.  Conclusão:  estes resultados podem contribuir para a compreensão das necessidades destas famílias, nomeadamente no domínio emocional e reforçar a importância de adequar as intervenções de enfermagem neste âmbito.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract  Background:  caring for children with chronic conditions and their families requires in-depth knowledge of families and their disease management process.  Objectives:  to describe the sociodemographic profile of the parents and the clinical profile of the children/adolescents with chronic pediatric conditions; to describe the parents' perception of the support provided by the nurses; and to explore the association between the parent's perception of the support provided by the nurses and the sociodemographic variables.  Methodology:  this descriptive-correlational study involved a sample of 237 parents who participated by answering an online questionnaire. The questionnaire included the Portuguese version of the Iceland-Family Perceived Support Questionnaire and questions about disease management and parents' perceptions of their own and their children's health.  Results:  the sample comprised mothers of adolescents with chronic physical illnesses and behavioral disorders. These parents reported a perception of support provided by nurses that was above the midpoint of the scale, with higher levels of perceived support in the cognitive domain. An association was found between the perception of support provided by nurses and the parent's level of education, age, children's age, and the parents' self-perception of health.  Conclusion:  these results may contribute to understanding the needs of these families, particularly in the emotional domain, and reinforce the importance of adapting nursing interventions for these families.]]></p></abstract>
<abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen  Marco contextual:  el cuidado de los niños con enfermedades crónicas y sus familias requiere un conocimiento profundo de las familias y su proceso de gestión de la enfermedad.  Objetivos:  describir el perfil sociodemográfico de los padres y clínicos de niños/adolescentes con enfermedades pediátricas crónicas; describir las percepciones de los padres sobre el apoyo proporcionado por los enfermeros y explorar la asociación entre las percepciones de apoyo y las variables sociodemográficas.  Metodología:  es un estudio descriptivo-correlacional, participaron 237 padres, que respondieron al cuestionario online que incluía la versión portuguesa del Iceland-Family Perceived Support Questionnaire y preguntas sobre el manejo de la enfermedad y las percepciones de los padres sobre su propia salud y la de sus hijos.  Resultados:  La mayoría de los encuestados eran madres de adolescentes, con enfermedades físicas crónicas y trastornos del comportamiento, que informaron de una percepción del apoyo prestado por los enfermeros por encima del punto medio de la escala, mayor en el nivel del dominio cognitivo. Se encontró una asociación entre la percepción del apoyo dado por las enfermeras y el nivel de educación de los padres, la edad de los padres, la edad de los hijos y la autopercepción de salud de los padres.  Conclusión:  estos resultados pueden contribuir a la comprensión de las necesidades de estas familias, particularmente en el dominio emocional, y refuerzan la importancia de adaptar las intervenciones de enfermería para estas familias.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[doença crónica]]></kwd>
<kwd lng="pt"><![CDATA[criança]]></kwd>
<kwd lng="pt"><![CDATA[enfermagem de família]]></kwd>
<kwd lng="pt"><![CDATA[perceção de apoio]]></kwd>
<kwd lng="en"><![CDATA[chronic disease]]></kwd>
<kwd lng="en"><![CDATA[child]]></kwd>
<kwd lng="en"><![CDATA[family nursing]]></kwd>
<kwd lng="en"><![CDATA[perception of support]]></kwd>
<kwd lng="es"><![CDATA[enfermedad crónica]]></kwd>
<kwd lng="es"><![CDATA[niño]]></kwd>
<kwd lng="es"><![CDATA[enfermería de la familia]]></kwd>
<kwd lng="es"><![CDATA[percepción del apoyo]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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